Survey ‘Arginine VasoPressin Deficiency’ for Health Care Professionals

Many individuals with pituitary or adrenal disorders are affected by AVP-D, yet their treatment is frequently inadequate due to a lack of awareness.
To enhance understanding and visibility, we need your help in resharing this information! Please share it with your members and encourage them to pass it along to their healthcare professionals, nurses, pharmacists, and other relevant stakeholders.
Below, we have provided text for you to use in your email or social media posts:

🧑🏽‍⚕️ Health Care Professionals: We Need Your Input! 📢

In 2022, the Endocrine Society and the global ‘Working Group for Renaming Diabetes Insipidus’ recommended a name change from diabetes insipidus (CDI) to Arginine Vasopressin Deficiency (AVP-Deficiency, AVP-D) in order to better reflect the condition’s pathophysiology and avoid confusion with diabetes mellitus.

But has this change been widely adopted in clinical practice? Is there still confusion between the two terms in 2025? Do healthcare professionals and patients understand how to safely manage AVP-D and desmopressin (and avoid complications like hyponatremia and hypernatremia)?

🌎 This global survey aims to find out!

We wish to gather insights on how AVP-Deficiency is understood, diagnosed, and managed across specialties (both endocrine and non-endocrine). Your participation will help improve patient education and clinical practices for this rare condition.

The survey takes just a few minutes, and your responses are anonymous. You can reply to the survey here: https://feedback.surveylab.com/92c/HCP/AVP-D/SURVEY/

Your time and effort is greatly appreciated: by answering our survey you will be helping us to improve AVP-D awareness and patient safety! 🤝

And please share with your network so that we can reach the maximum number of healthcare professionals possible!

Additional Information on Outcomes Patients Survey, presented by Dr. Cihan Atila (Neuro-endocrinology group at Basel University, Switzerland) during the WAPO Global Summit 2024:
English:
https://www.wapo.org/library/ws24-avp-d-diabetes-insipidus-study-outcomes-and-more-c-atila-clin-neuroendocrinology-university-basel-switzerland/
Spanish:
https://www.wapo.org/library/ws24-spa-avp-d-diabetes-insipidus-study-outcomes-and-more-c-atila-clin-neuroendocrinology-university-basel-switzerland/