Extended date – WAPO Global Acromegaly Patient Survey in various languages

Good news! We have extended the survey till November 16th!

We are pleased to let you know that the WAPO Acromegaly Research Patient Survey is now available in Spanish and German, as well as English.
The survey aims to understand the wider experience of living with acromegaly, including what matters to patients beyond the clinical measurements that are often the main focus of care.

We want to hear from as many people living with acromegaly or their caregiver or family member to complete the survey with them, across different countries and communities.

Please help us by sharing the survey widely through your networks, social media and patient communities, particularly during Acromegaly Day (November 1) and Pituitary Month (October).

To help you share the survey, please use the below links or flyers with QR code:

Links:

English: https://live.e-survey.io/switch/share/601d653853

Spanish: https://live.e-survey.io/switch/share/18883173af

German: https://live.e-survey.io/switch/share/0a09787888

Flyers including QR code:
WAPO 2026 Global Acromegaly Patient Survey 2026 – English – extended date
WAPO 2026 Global Acromegaly Patient Survey 2026 – German – extended date
WAPO 2026 Global Acromegaly Patient Survey 2026 – Spanish – extended date

Important:
Please always use and share the survey links provided with this message.
Do not copy the address from your internet browser, as this may direct people to the wrong survey or location.Following the patient survey, we plan to develop a questionnaire for healthcare professionals and compare the findings. We aim to develop recommendations for publication and share the findings at the 10th WAPO Global Summit in 2027.
Every patient voice matters!
Please help us reach as many people living with acromegaly as possible.

Thank you for your support.

This project was made possible with financial support from Camurus and WAPO. 

My Acromegaly Reflection Sheet

Exciting news!

WAPO has teamed up to create an incredible new resource for those living with Acromegaly. Introducing the ‘Patient Reflection Sheet’—a fantastic tool designed to help patients gain valuable insights into their daily lives, symptoms and emotional well-being over time. This handy sheet is perfect for bringing along to appointments with your physician, endocrinologist, or neurosurgeon, serving as a thoughtful discussion starter.

Currently, it’s available in English and Spanish, but stay tuned! We’re looking forward to expanding this resource into Swedish and German to better support patients everywhere. Together, we can empower individuals on their journey with Acromegaly!

Available Sheets:

WAPO – Acromegaly Patient Reflection Sheet  (October 2026)
WAPO – Mi Acromegalia Ficha de Reflection   (November 2026)


The development of this material has been supported financially by Camurus.

WAPO Acromegaly Patient Survey

The WAPO Acromegaly Patient Research survey is open.

Through this survey, initiated by WAPO member organizations, we aim to gather deeper insights regarding the needs and difficulties faced by people living with Acromegaly, such as effects on daily activities, the support available to you, and what you feel is lacking. It is a project and survey ‘beyond biochemistry’.

This global survey is intended for people living with acromegaly or for caregivers completing the survey on behalf of their family member.
If you would like to receive an interview invitation later, please provide your email address after finishing.The input obtained will provide insights that we will evaluate against the input from health care professionals, which is the upcoming survey project.
All results will be released and/or showcased at the upcoming WAPO 10th Global Summit 2027, with recordings to be available in the WAPO Library.Currently, the survey is available only in English, but we have secured funding for translations in in Spanish and German as well, which we hope to launch around Acromegaly Day, November 1st.

Please distribute the survey link or QR code within your networks and assist in connecting with the acromegaly communities.
Each reply contributes to a deeper comprehension of living with acromegaly.

Please use this link or QR code:
English : https://live.e-survey.io/questionnaires/6a82e46e5e75b/4f6f187354

 

 

Worldwide Acromegaly Study


Do you want to help Acromegaly patients get diagnosed sooner?

We know that earlier diagnosis usually improves outcomes and quality of life. Please take part in our international research study that uses computer technology to try to diagnose patients sooner by detecting the earliest features of Acromegaly.

We are looking for individuals who currently have or previously had Acromegaly (including gigantism) or other types of pituitary adenomas/tumours to participate.

Your participation in this study is critical to help develop the most accurate tools for diagnosis and greatly improve the quality of life of future patients. In this study, you will be asked to upload your photographs and complete a questionnaire, for use in a machine learning analysis. You can access the study using the link provided below.

If you have questions about taking part in this study, you can send an email to the research team at acromegaly-research@smh.ca or telephone at 001-416-864-5312.

Thank you for considering participation in this project.

For more information on the study or to participate, please click on the URL link below or enter it in your browser or scan the QR code:

https://lnkd.in/gUsBYFFK