Health Information

While suffering with the results of our pituitary, adrenal or rare diseases, WAPO invited several health experts in the past WAPO Global Summits, e.g. Mindfulness and Tai Chi exercises for the present patient advocates.
During the discussions, it became more and more clear, that it is difficult to find the right exercises or health trainer, while are understanding what ‘living with a pituitary disease’ means.

We hope, with this page on our website, to collect and share interesting news and exercises to do at home and/or with your caregiver(s).
Ofcourse we invite you to share content or let us know how the information and exercises are helping you!

Tai Chi shibashi-exercises by Ros Smith – UK

Information

Medical information sharing

  • a general facebook page as well as a page for WAPO members only, the Facebook Forum Group;
  • Social Media accounts, like Twitter and LinkedIn;
  • an International Travel Letter, in many languages, including supporting information to prepare travelling;
  • By laws;
    • the Declaration of Zurich, original version in 2012, and reviewed in 2017;
    • the WAPO Code of Conduct, to be signed by all representing patient advocates;
    • a blog, which since 2020 is replacing the quarterly newsletter;
    • organization of an annual WAPO Summit incl. AGM, since 2016.
  • During the Covid-19 pandemics, virtual eSummits were organized in 2020 and 2021;
    • organization of a webinar, which will find a follow-up in 2022, with a series of informative webinars;
  • organization of an online serie of meetings in the ‘Global Café’, to meet and share experiences during the Covid-19 pandemic incl. sessions in English, Spanish and Russian.
  • Mapping Project I (2018/2019) and Mapping Project II (2021) to engage our members and to understand what is important in different countries – like medicine availability;
  • Task Force, since September 2020, WAPO supports member organizations on request;
  • Medical Advisory Board, now with 6 health care professionals, in future more HCPs to be invited.
  • Webinar 2022 Series, 8 webinars during 2022 on important topics for the pituitary community, and create an informative library – in open access and in English + Spanish – on the WAPO website.

information to be shared on body

Want to support the Health and Exercise page?

To make the Health and Exercise page grow, we need your help
in finding interesting and supporting content.
Please share your information with us via mail@wapo.org.

We look forward to your email.

Get in touch