OUR MISSION: WAPO believes that the strength of a global network of national pituitary patient organizations will lead to improved diagnosis, treatment and care for pituitary and adrenal patients worldwide.

Partners & Sponsors

At WAPO, we believe in partnerships that helps to engage bright minds and pool resources from across the community to move faster towards the vision we share. We look for leaders, thinkers, and doers who can analyse, research, plan, and implement using their knowledge and experience in collaboration with WAPO for the benefit of the community. We also look for organizations ready to support our activities with their resources of all kinds, and we are ready to support them in return. Interested in becoming our partner? Contact us!

Our organizational partners

Adrenal Insufficiency United

Adrenal Insufficiency United is working to improve the lives and empower those affected by adrenal insufficiency through advocacy, awareness, collaboration, education, research and support.

http://aiunited.org

EURORDIS

EURORDIS-Rare Diseases Europe is a unique, non-profit alliance of over 1000 rare disease patient organisations from 74 countries that work together to improve the lives of over 300 million people living with a rare disease globally.
By connecting patients, families and patient groups, as well as by bringing together all stakeholders and mobilising the rare disease community, EURORDIS strengthens the patient voice and shapes research, policies and patient services.

https://www.eurordis.org

FindMeCure

FindMeCure is an organization that navigates patients around treatment alternatives while helping the Life Sciences industry to better understand the patient journey and their unmet needs. One of our goals is to make clinical trials more efficient and prevent trial delays through data analytics so that promising treatments can reach more people in need faster.

https://findmecure.com

Federation of International Nurses of Endocrinology

The Federation of International Nurses in Endocrinology (F.I.N.E) vision is to provide an accessible, global network of nurses in endocrinology that promotes optimal health outcomes for persons with endocrine disorders across the lifespan. FINE mission is to advance the science and art of endocrine nursing through collaboration, research and global educational activities, to commit to ongoing development in standards of practice, to further patient education and support the patient voice in endocrine care.

https://finenurses.org

International Society of Endocrinology

The International Society of Endocrinology (ISE) is the global federation of endocrine societies and its mission is to promote endocrine and metabolic science, education, practice, and advocacy worldwide. ISE facilitates collaboration and integration across endocrine organisations and regions; provides virtual and live platforms to disseminate knowledge and research and bridges the gaps in education. The society’s focus is particularly on championing endocrinology networks in emerging regions and supporting early-career endocrinologists.

https://www.isendo.org

Patient Focused Medicine Development

PFMD is a global, collaborative and non-competitive coalition. Established in 2015, PFMD’s goal is to continuously improve global health by co-designing the future of healthcare for patients WITH patients. ( .

http://pfmd.org

Pituitary World News

Pituitary World News is a news organization dedicated to producing original content and amplifying the work advocacy and other support organizations, including industry and government, are doing on behalf of pituitary and endocrine patients worldwide. Patients, advocates, healthcare professionals, and physicians collaborate to create content and create a platform for communication, collaboration, creativity, and innovation. Through our publishing efforts, we advocate for more support programs, drugs, therapies, access, mental health, etc. Our editorial policy places great weight on what benefits patients worldwide. Our mission is to increase awareness – following strict, scientifically accepted methods through information and education. Early diagnosis considerably reduces the related conditions, improves quality of life, and lowers costs.

Pituitary World News

Rare Diseases International

Rare Diseases International (RDI) is the global alliance of Persons Living with a Rare Disease and Families around the globe. Our members are patient-driven rare disease umbrella organisations active in over 150 countries.

Together we represent Persons Living with Rare Diseases at international institutions and promote rare diseases as a policy priority. RDI facilitates global initiatives to improve access to health and empowers rare disease civil society groups through knowledge-sharing and joint actions

http://www.rarediseasesinternational.org

touchENDOCRINOLOGY

touchENDOCRINOLOGY is proud to be at the forefront of on-demand and virtual formats, pushing the boundaries for online medical education.

Learn more from touchENDOCRINOLOGY with CME-accredited and independent learning activities
Watch highlights and coverage from leading international ENDOCRINOLOGY congresses
Read the latest articles from our peer-reviewed therapy journals and unique expert insights developed for touchENDOCRINOLOGY

https://www.touchendocrinology.com

https://www.touchendocrinology.com/speciality/pituitary/

TrialHub

TrialHub is an AI-powered data intelligence platform for clinical trial strategists who want to predict challenges and opportunities in their clinical trials using real-time feasibility and patient insights. Covering 70+ countries across all indications, TrialHub eliminates manual research, saving time for strategic planning. With 80,000+ real-time data sources, we provide insights on trials, sites, patients, and regulations – all in one place.
We are the first feasibility platform to integrate Standard of Care insights and connect reimbursed drugs, fully automated and a few click away. Since 2019, we’ve supported 6,000+ clinical trials, helping teams design better trial strategies and overcome patient recruitment challenges.

Our organizational sponsors

Recordati Rare Diseases

At Recordati Rare Diseases, we focus on the few – those affected by rare diseases. We believe that every single patient has the right to the best possible treatment. Patients with rare diseases are our top priority. They are at the core of our planning, our thinking and our actions.

https://www.recordatirarediseases.com/home

Ipsen

Ipsen is a dynamic and growing global biopharmaceutical group focused on innovation and Specialty Care that is improving people’s lives through differentiated and innovative medicines in Oncology, Neuroscience and Rare Diseases. Our strong position in Specialty Care, combined with our heritage in Consumer Healthcare, provides us with the scale, expertise and stability needed to make a sustainable difference for people in tomorrow’s healthcare environment.

For more information, you can visit https://www.ipsen.com/

Camurus

Camurus is a growing biopharmaceutical company with headquarters in Sweden, committed to improving the lives of patients with severe and chronic diseases. Camurus is conducting clinical trials in some rare diseases such as acromegaly and neuroendocrine tumors.

http://camurus.com

Novo Nordisk

Novo Nordisk Rare Disease is a speciality care unit focused on generating scientific and technological breakthroughs for people with rare diseases. With a 40-year legacy and expertise in rare blood and endocrine disorders, Novo Nordisk drives innovations to lessen the burden and truly achieve life-changing benefits for people living with a rare disease – a population where the unmet need remains high and collectively affects around 350 million people across the globe. Learn more about how we drive change in rare disease here.

Lundbeck

Lundbeck is a biopharmaceutical company focusing exclusively on brain health. With more than 70 years of experience in neuroscience, we are committed to improving the lives of people with neurological and psychiatric diseases.

Brain disorders affect a large part of the world’s population, and the effects are felt throughout society. With the rapidly improving understanding of the biology of the brain, we hold ourselves accountable for advancing brain health by curiously exploring new opportunities for treatments.

As a focused innovator, we strive for our research and development programs to tackle some of the most complex neurological challenges. We develop transformative medicines targeting people for whom there are few or no treatments available, expanding into neuro-specialty and neuro-rare from our strong legacy within psychiatry and neurology.

Lundbeck

ESTEVE

ESTEVE is an international specialty pharma company founded in 1929 with a clear purpose: to improve people’s lives. This purpose drives every action, from research and development to patient care and sustainability efforts. Committed to addressing unmet medical needs, ESTEVE enhances patient care through cutting-edge therapies and a strong international presence.

https://www.esteve.com/

Partners & Sponsors

Our organizational partners

Adrenal Insufficiency United

EURORDIS

FindMeCure

Federation of International Nurses of Endocrinology

International Society of Endocrinology

Patient Focused Medicine Development

Pituitary World News

Rare Diseases International

touchENDOCRINOLOGY

TrialHub

Our organizational sponsors

Recordati Rare Diseases

Ipsen

Camurus

Novo Nordisk

Lundbeck

ESTEVE

Contact information

Terms and conditions

More information