OUR MISSION: WAPO believes that the strength of a global network of national pituitary patient organizations will lead to improved diagnosis, treatment and care for pituitary and adrenal patients worldwide.

Projects

The World Alliance of Pituitary Organizations (‘WAPO’) is a self-governed non-profit organization created in order to unite the international pituitary patient community to push for optimal treatment and care for all patients with pituitary and related conditions worldwide.

The goal of our organization is to share information, work together and support all pituitary patient organizations around the world.

WAPO has a great potential value for pituitary patient advocates, as it serves as:

A united global patient voice in international and national policy-making;
A forum to gather and disseminate evidence-based information on pituitary and related diseases;
A source of best-practices shared by pituitary advocacy organizations and operations;
The spearhead in the drive to increase global pituitary awareness activities.

Our projects

WAPO’s activities are always outcomes of the previous Summit and AGM, discussed with patient advocates present and via online meetings.

For 2023|2024 the following projects are scheduled:

– WAPO 2023 Webinar Series – 9 presentations, in English + Spanish, available in our Library;
– ‘Comorbidities incl. the impact of a Pituitary disorder’ – Survey with various parties (depending on funding);
– WAPO Global Summit; scheduled for October 6-7-8, 2023 incl. AGM;
– ‘Transition of Care for Young Adults’ – Committee to collect data and  support patient organizations with knowledge.
– Mapping 2023|2024 Project III – interviews with member organizations.

When you like to collaborate with our 2023|2024 activities, we look forward to connect with you.

WAPO Annual Activity Reports & Finances

Like most organizations, we always look back on our activities and finances of the past year in January. Earlier we did this via the ‘Summit Reports’ (2016-2018). From 2018 onwards, we have continued with the ‘WAPO Annual Activity Report’, where you can find general information and a year overview of our activities and organizations we collaborate with.
New editions are available by end of January:

WAPO 2018 Activity Report – Final
WAPO Activity Report 2019 – Final
WAPO 2020 Activity Report – Final
WAPO 2020 Financial overview
WAPO 2021 Activity Report – Final
WAPO 2021 Financial Overview
WAPO 2022 Activity Report – FINAL
WAPO 2022 Financial Overview

  • a general facebook page as well as a page for WAPO members only, the Facebook Forum Group;
  • Social Media accounts, like Twitter and LinkedIn;
  • an International Travel Letter, in many languages, including supporting information to prepare travelling;
  • By laws;
    • the Declaration of Zurich, original version in 2012, and reviewed in 2017;
    • the WAPO Code of Conduct, to be signed by all representing patient advocates;
    • a blog, which since 2020 is replacing the quarterly newsletter;
    • organization of an annual WAPO Summit incl. AGM, since 2016.
  • During the Covid-19 pandemics, virtual eSummits were organized in 2020 and 2021;
  • organization of a webinar;
  • organization of an online serie of meetings in the ‘Global Café’, to meet and share experiences during the Covid-19 pandemic incl. sessions in English, Spanish and Russian.
  • Mapping Project I (2018/2019) and Mapping Project II (2021) to engage our members and to understand what is important in different countries – like medicine availability;
  • Task Force, since September 2020, WAPO supports member organizations on request;
  • Medical Advisory Board, now with 6 health care professionals, in future more HCPs to be invited.
  • Webinar 2022 Series, 8 webinars during 2022 on important topics for the pituitary community, and create an informative library – in open access and in English + Spanish – on the WAPO website.
  • Webinar 2023 Series: active now –> 9 webinars during 2023, availability in the WAPO Library (wapo.org) in English and Spanish.

Want to know more about WAPO Projects?

When you have questions, suggestions or want to collaborate,
please let us know, via mail@wapo.org

Get in touch